January 17, 2006

January 17th, 2006 | by Matt |

  

Kevin had his followup visit with the cardiologist today. He’s gained more weight – up to 4.29 kb (9 lbs 7.25 oz). This still only puts him at the 5th percentile, though! His length is right around the same percentile. He seems so big and chunky to us now, but he’s still got a ways to go after his late start in growing.

Last visit to the cardiologist, she took him off one of his medicines (Spironolactone, a weak diuretic). So this time they wanted to make sure his potassium was okay and that he wasn’t retaining any fluid. His x-ray looked good and his potassium levels were fine, so she took him off his potassium chloride medicine and reduced his lasix to once a day. So now he’s down to only 4 medicines – 2 twice a day and 2 once a day. Continued reduction in meds certainly makes it easier on us, and we’re so glad he’s progressing enough that he doesn’t need them.

He continues to be a very well-tempered little guy. He’s rarely mad and screaming, and when it is it’s usually because he’s hungry! He loves being held, of course, and we indulge him as much as possible. He’s not a big fan of his swings yet, either. He mostly likes to stare at lights, walk around, and be held. He’s holding his head up pretty well and looking around and is becoming a little more aware of his arms, I think. He is spending a little more time awake during the day and sleeping pretty well at night, so we’re all getting into a bit more of a groove.