January 5, 2006

January 5th, 2006 | by Matt |

Kevin continues to do well at home. He’s slowly gaining weight, although not as fast as they would probably like him to – he’s about an ounce shy of 8 pounds now. We continue to struggle with his eating and spitting up. We took out his NG tube today because we need to switch nostrils weekly, and we haven’t put it back in yet because for the last two days he’s been taking his bottle very well.

We saw the pediatric cardiologist today and everything looks stable. There were no new signs for concern or anything, and she said his color is good and he just looks good all around. his x-ray looked a lot better to us since the last one we had in Iowa City, but she hadn’t seen that one so she couldn’t give her opinion on whether it was improved. She took him off one of his medicines (down to 5 of them twice a day now!) and we will come back in 10 days to have labwork done to make sure he’s still fine without it. Giving him his medicines really isn’t that much work, but it will be nice to slowly reduce the amount of ‘extra’ things we need to deal with.

His vocal chord seems to have recovered quite a bit, since he is now quite loud when he cries. He’s not as loud as a typical baby, but we can still easily hear him from across the house. He’s content most of the time, but when he has gas or when he doesn’t want his medicines, he sure lets us know. Most of the time he just wants to be held, suck on his binky, stare at the lights, or play on his ‘exercise mat’.